So the reality of today's medical center visit was not so terrible - its just six hours... I think its the relentlessness of the illness- it's constant demands for attention that wear... bc we had been sick (and by we- I mean all three of us) we were placed in infection control (so many glamorous masks/gowns/booties/caps/gloves) --
I packed sushi, a birthday cake, the worst popcorn in the world, games, and - of course- knitting. I let the kids have unlimited screen time, we sang Stevie Wonder songs, I billed client time, Lala created a unicorn rebel avatar, I didn't cry when Lala did bc of the needles, Sarah pondered (she is such a bad ass) on the whole focus on unicorns being white not black, and drop by infusion drop we passed the hours ... until it was time to uber home.
Everyone was wonderful - the pediatric infusion center is the best of the best - and I feel so grateful for their care for Lala that I could weep. They are so patient centered. They honor Lala as the individual she is and they believe in choice and kids being in charge of their own bodies. It makes me weepy bc its so uncommon in this system of medical care.
The body is not an apology - and there is so much work to be done if you happen to be a female, child, person-of-color, who is not able bodied. At the end of the infusion- we all sat on the bed with the best-nurse-ever (Stella) - and shared pictures and stories about our silly little dogs -- #winning - Lala was not psychotic from the medication this time so the uber home was uneventful.